Event: WITH GREAT GENOMIC DATA COMES GREAT RESPONSIBILITY

25 June 2018

6.30pm8.30pm on 26 June 2018

This event will explore questions raised by Big Data, the 100,000 Genomes Project and the new national NHS Genomic Medicine Service. The event is produced by Progress Educational Trust in partnership with Genomics England, as part of the Genomics Conversation.

The discussion will be chaired by TIMANDRA HARKNESS (author of the book Big Data: Does Size Matter?), with speakers including PROFESSOR ANN DALTON (Sheffield Children’s Hospital), PROFESSOR ANTHONY BROOKES (University of Leicester), PROFESSOR TIM HUBBARD (Genomics England) and DR NATALIE BANNER (Understanding Patient Data).

This event is taking place at University College London‘s Institute of Child Health. Email sstarr [at] progress.org.uk to book your FREE place(s).

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Job: Research Fellowship (Socio-Legal) in the Centre for Biomedicine, Self and Society, The University of Edinburgh

18 June 2018

The Centre for Biomedicine, Self and Society is seeking an experienced researcher in the field of socio-legal studies to contribute to scholarly and engagement activities within this cross-College, cross-School initiative. The Centre, supported by the Wellcome Trust, seeks to effect lasting change in how we understand and influence the dynamic relationship between biomedicine, individuals and society.

Working closely with the Centre’s Executive Team, the successful candidate will develop and undertake an empirical socio-legal research project concerned with the legal consciousness of stakeholders in a health research context, such as in the realm of reproductive medicine, data sharing or clinical trials. You will also contribute to cross-cutting projects involving other members of the Centre.

The work demands close attention to detail, the ability to prioritise, identify and achieve deadlines and use good judgement and initiative. A positive collaborative attitude is also essential.

The successful candidate will have demonstrated success in research, supported by a track record of strong relevant publications. In addition, applicants are invited to explore how their research interests complement the existing strengths of the Executive Team and their respective Schools.

The post is available from 1st September 2018, full-time and fixed-term for 24 months.

Please include your CV and a supporting statement with details of how you meet the knowledge, skills and experience required for this post.

Informal enquiries may be directed to Professor Graeme Laurie (Graeme.Laurie [at] ed.ac.uk).


Job: Policy officer at the HFEA

31 July 2017

Policy Officer
Fixed term contract (maternity cover)

Location: London

Salary: £25,000 plus benefits

Closing dates for applicants: 04/08/2017

We are looking for a fixed-term, full time Policy Officer to support a wide range of policy-related work. A key part of this will be to support Policy Managers in managing stakeholder groups and in carrying out reviews of HFEA policy, which can involve drafting committee papers, analysing consultation responses and giving policy advice. You will be working on various areas of policy, including on reducing multiple births, sperm and egg donation and fertility preservation. The successful candidate will also be responsible for dealing with patient, public and sector enquiries relating to all our policy areas.

This is an exciting opportunity for someone who can work effectively as part of a team, and who has good written and verbal communication skills – including an ability to handle sensitive patient enquiries. You should be able to demonstrate experience of project management and of working with a variety of stakeholders. You should also have the skills required to undertake literature searches, be confident at analysing information, and have the ability to summarise and identify key points from a wide range of evidence.

Given the varied nature of this role, good time management skills and the ability to prioritise tasks effectively, is key. You will be educated to degree level (or be educated or have experience to an equivalent level) with good IT skills.

This is a unique opportunity to play a key role in supporting the Policy team to help ensure that everyone in the UK affected by assisted reproduction receives high quality care. You will have the chance to make a real and tangible difference to our work and the lives of patients. For more information about the work we do, please visit our website.

Please visit NHS Jobs to apply for this position


Conference: The Abortion Act: A Promise Fulfilled?

13 July 2017

24 October 2017 – 25 October 2017
The Royal College of Obstetricians and Gynaecologists, 27 Sussex Pl, Regent’s Park, London NW1 4RG

Tickets and information

The passing of the 1967 Abortion Act was a landmark moment for our reproductive rights, achieved at the vanguard of a wave of liberalising change across the western world, and directly inspiring reform in a number of other countries.

But fifty years later, how well does the Act serve women today?

In the week of the Act’s fiftieth anniversary, this two-day conference will examine its impact, its shortcomings, and the extent to which its liberal proponents’ hopes have been realised.  Contributors including leading health care professionals, academics, policymakers, politicians, campaigners and service providers will address a range of important socio-legal, historical, political and clinical practice-based questions.

The conference is co-sponsored by the Universities of Bristol, Kent, and Leeds, and bpas, with generous funding from Wellcome.  It will be hosted by the Royal College of Obstetrics and Gynaecology.


Conference: Boundaries, Bodies, Borders: The Global Exchange of Human Body Parts

27 March 2017

5th May 2017, University of Leeds

10.00-16.30, Social Sciences Building, room 12.21-12.25

Call for abstracts

The global movement of donated human body parts (e.g., blood, embryos, organs, sperm, oocytes) have gained increasing academic attention. A large part of these accounts express concerns regarding unequal power relationships between countries and between the parties engaged in medically related relationships (recipients, medical staff and medical facilities, providers of organs, tissues or cells etc.).

We wish to invite postgraduate students and early career researchers to explore the processes of meaning making in relation to body parts exchanges, and think about the following questions:

•      how do understandings of various technical procedures, bodies and body parts, and relationships (such as exchange relationships) emerge?

•      who does participate in framing them?

•      how do these understandings direct the flows of body parts across borders?

We welcome contributions that analyse how different actors delineate the boundaries between science, ethics, law and other types of authority as part of their valuation performance, and how they manage uncertainty and risk in the process.

Abstract submission

Please send abstracts (150-250 words) to A Gruian, ssag [at] leeds.ac.uk, by 3rd April 2017

Speakers

The event will be chaired by Dr Ana Manzano (University of Leeds). Speakers:

• Prof Ruth Holliday (University of Leeds).Medical Mobilities: Economies and Ethics

• Dr Sean Columb (Liverpool Law School). Organ markets & exploitation: Assessing the impact of crime and immigration controls in the Egyptian-Sudanese context

• Dr Mark Monaghan (Loughborough University). Conceptualising Crime, Evidence, and Immorality

• Dr Greg Moorlock (University of Warwick). Beauty Contests & Directed Altruistic Donation

• Alexandra Gruian (University of Leeds). Ova Flows in Romania: Definitions, Legitimacy, Legality

Registration fees

• BSA members: £10                 Non-members: £25

• We offer 5 bursaries for postgraduate students. Fee includes lunch and refreshments

• Register here.


Debate: FERTILITY TREATMENT ADD-ONS: DO THEY ADD UP?

10 March 2017

Royal College of Obstetricians and Gynaecologists, 27 Sussex Place, Regent’s Park, London NW1 4RG

29 March 2017 6pm (wine reception), 6.30pm-8.30pm (panel discussion)

This Progress Educational Trust event, which is sponsored by the British Fertility Society, will begin with a wine reception at 6pm followed by a panel discussion at 6.30pm. To reserve your free place, email sstarr [at] progress.org.uk

The panel discussion will be chaired by FIONA FOX (Chair of Trustees at the Progress Educational Trust and Chief Executive of the Science Media Centre) with speakers PROFESSOR ADAM BALEN (Chair of the British Fertility Society), SALLY CHESHIRE (Chair of the Human Fertilisation and Embryology Authority), DR SIMON FISHEL (Founder and President of CARE Fertility) and DR RAJ MATHUR (Lead for Reproductive Medicine at St Mary’s Hospital in Manchester).

Fertility treatment ‘add-ons’ are procedures and treatments offered alongside IVF – sometimes at considerable expense to the patient – which may not be supported by robust evidence. The benefits, harms and appropriateness of add-ons are often open to question, and the role of add-ons in fertility treatment has become a matter of heated debate among professionals and a source of confusion for patients.

Recently, add-ons have been discussed and debated in a controversial episode of the BBC1 programme Panorama entitled Inside Britain’s Fertility Business, in two studies published by in the British Medical Journal, in a study published by the journal Human Reproduction, and in work undertaken by the UK’s fertility regulator – the Human Fertilisation and Embryology Authority (HFEA).

Our event will ask:

• What counts as an add-on?

• Who is best placed to judge the evidence for add-ons, and what is the ideal standard of evidence?

• How much evidence is it reasonable to expect, before a treatment is offered to patients?

• What is the role of the HFEA, the National Institute for Health and Care Excellence and professional bodies such as the British Fertility Society, in helping patients navigate add-ons?

• What is the duty of the medical professional, and what is the role of patient choice?

Much of the event’s running time will be devoted to letting YOU put questions and comments to the speakers.


Play: Bodies by Vivienne Franzmann

20 February 2017

 

“We should have brought a gift.”

“We’ve brought a gift. It’s called 22 thousand pounds.”

Purchased from Russia. Developed in India. Delivered to the UK.

A global transaction over nine months that offers ‘a lifetime of happiness’ to all involved.

“What do you think will happen to a baby girl in India that nobody wants?”

Vivienne Franzmann’s previous work at the Royal Court includes Pests and The Witness. Her new play Bodies will be directed by Jude Christian (Lela & Co.).

Wed 5 Jul – Sat 12 Aug

Jerwood Theatre Upstairs, Royal Court Theatre

Tickets from £12. General booking opens on Wed 22 Feb at 10am.