Battle of Ideas 2008, Sunday 2 November, 11.00am until 12.30pm, Lecture Theatre 1, Royal College of Art, Kensington Gore, London SW7 2EU, part of the Battle for Biomedicine strand.
“Traditionally, we trust doctors with confidential information about our health in the knowledge that it’s in our own interests. Similarly, few patients object to the idea that such information may be used in some form for medical research. But what happens when this process is subject to scrutiny? How explicit does our consent have to be? Since the introduction of the Data Protection Act 1998 medical researchers have raised concerns over the increasing barriers they face to accessing patient data. These concerns have heightened amongst some researchers since the passing of the Human Tissue Act 2004 introduced in the wake of the Alder Hey and Bristol Royal Infirmary scandals. When scientific advances are unravelling the secrets of DNA and the decoding of the human genome has opened up substantial new research opportunities. Clinical scientists and epidemiologists argue that the requirements being placed upon them are disproportionate to the use they are making of either datasets or tissues samples and, besides, their work is in the public interest. At the heart of the debate lie key questions over trust and consent and how these can best be resolved.
To complicate things, it is no longer just medical researchers, but also public health bureaucrats who are keen to have access to our data. Quasi-official bodies have been charged with persuading individuals to change their behaviour and lifestyles in connection with all manner of issues such as diet, exercise, smoking and alcohol consumption. Social Marketing – the borrowing of commercial marketing techniques in the pursuit of ‘public goods’ – is in vogue amongst public health officials. Empowered by advanced data collection and computing techniques, armed with the latest epidemiological research, and emboldened by a mission to change unhealthy behaviour, public health officials are keen to target their messages to specific ‘market segments’ in most need of advice.
Are government researchers abusing patients’ trust? Can and should a distinction be made between the use of data for research and public health promotion purposes, or do the benefits of data-sharing outweigh its disadvantages?”
Mark Walport, director, Wellcome Trust; formerly Professor of Medicine, Imperial College London
Professor Ross Anderson, professor of security engineering, University of Cambridge; chair, Foundation for Information Policy Research; author of Security Engineering — A Guide to Building Dependable Distributed Systems
Tim Kelsey, chair, Executive Board, Dr Foster Intelligence, the UK’s leading health and social care informatics organisation; chief executive, Dr Foster Research
Professor Jeffrey Rosen, professor of law, George Washington University; legal affairs editor, The New Republic; author, The Unwanted Gaze
Dr Stuart Derbyshire, senior lecturer, School of Psychology, University of Birmingham; member, IoI Science and Health Forum.
Further details available here.