‘MAKE DO OR AMEND: SHOULD WE UPDATE UK FERTILITY AND EMBRYO LAW?‘ is a one-day conference taking place in London on Wednesday 5 December 2018 (9.30am–5.30pm).
The conference will explore law and regulation governing fertility treatment and embryo research. There will be Keynote Addresses by SIR JAMES MUNBY (former President of the Family Division of the High Court of England and Wales) and SALLY CHESHIRE (Chair of the Human Fertilisation and Embryology Authority).
Other confirmed speakers and chairs include DR ROY FARQUHARSON (Chair of ESHRE), DR KATHY NIAKAN (Group Leader at the Francis Crick Institute and the first researcher licensed by the UK regulator to edit the genomes of human embryos), BARONESS RUTH DEECH (Crossbench Peer in the House of Lords), DR ANDY GREENFIELD (Programme Leader at MRC Harwell), EMILY JACKSON (Professor of Law at the LSE), BARBARA CONNOLLY QC (Barrister), PROFESSOR CHRISTIAN DE GEYTER (Chair of ESHRE‘s European IVF Monitoring Steering Committee), PROFESSOR ELLIE LEE (Director of the Centre for Parenting Culture Studies), NATALIE GAMBLE (Founder of Natalie Gamble Associates and Brilliant Beginnings), JAMES LAWFORD DAVIES (Partner at Hempsons), SATU RAUTAKALLIO-HOKKANEN (Chair of Fertility Europe), ERIKA TRANFIELD (Director of Pride Angel), DR ROGER HIGHFIELD (Director of External Affairs at the Science Museum Group), DR KYLIE BALDWIN (Senior Lecturer at De Montfort University), PROFESSOR ROBERT SPACZYNSKI (Vice President of the Polish Society of Gynaecologists and Obstetricians), FIONA FOX (Chair of Trustees at PET [Progress Educational Trust] and Chief Executive of the Science Media Centre), and SARAH NORCROSS (Director of PET).
The conference is supported by the Anne McLaren Memorial Trust Fund, the Edwards and Steptoe Research Trust Fund and ESHRE (silver sponsors), and by Ferring Pharmaceuticals, the European Sperm Bank, JMW Solicitors, the London Women’s Clinic and Vitrolife (bronze sponsors).
Further details of the conference, including the agenda and how to book your place, can be found at http://www.progress.org.uk/conference2018 – if you have any queries, please email sstarr [at] progress.org.uk
Thursday 25th October 2018, 10:00-17:00
Friday 26th October 2018, 9.30-17:00 with drinks and canapés from 17:00 till 19:00
Venue: Wellcome Collection, 183 Euston Road, London, NW1 2BE
Advances in synthetic genetic technologies and artificial intelligence research promise the emergence of new forms of life, some of which may be conscious and will thus pose entirely new challenges for the law. Their advent may require a re-evaluation of Homo sapiens’ legal and social primacy; and will pose disruptive global challenges for society and the law as regards the moral status of these beings, their protections, their freedoms, their obligations, and our own towards them. It seems likely that these technologies will be the product of public companies and in particular multinational corporations, and we may find ourselves facing the cyberpunk future represented by Blade Runner’s Tyrell Corporation. Dr Lawrence and Dr Morley have received funding from the Wellcome Trust to conduct a project of research into this area, with a specific focus on how we might control companies’ development of these beings via regulation. A new network of expertise has been created through a number of events prior to this conference, considering these future technological developments and beginning to suggest practical legal definitions for the status of both conscious and unconscious novel beings. A future goal for this group is to assist in developing proposals for appropriate regulation for the responsible development, operation, and disposal of the technologies. A roundtable (January 2018) comprising renowned experts in ethics and law- including Professors John Harris and Chris Reed, and Drs Sarah Chan and Ruth Stirton- formed the nucleus of this network and set the agenda for our research. The first symposium (held in April 2018) considered the interplay between consciousness, responsibility, and liability, and attempted to provide a basis for developing workable legal definitions of consciousness that may be applicable in many fields of law – which will be essential for assessing levels of accountability required by companies, or the new beings themselves and any rights that might be bestowed upon them. The second symposium (held in June 2018) built upon the first and specifically address the responsibility of companies in the development, operation, and disposal of these technologies. Morally significant questions are currently not answered by the law; for example, as the law stands Directors are not required to consider whether these beings have a right to life, to liberty, or to self-ownership; nor to the impacts its existence and operations may have on society. We invite you to join us at the two-day final conference of this project, which will continue the work of these symposia and bring together a variety of researchers of disparate fields (including medical law and jurisprudence, policymakers, legal practitioners, and computer scientists) alongside new perspectives from neuroscience, neurology, consciousness studies and bioengineering in order to set the stage for future investigations of these legal conflicts and their wider implications.
Convenors: Dr Sarah Morley, Dr David Lawrence
If you’d like to attend, please register for free ASAP by contacting: sarah.morley [at] ncl.ac.uk with any dietary requirements.
Agenda – Thursday 25th October
Arrival – 10.00am
Registration and coffee
Introduction- 11:00- 11:30
Dr Sarah Morley, Dr David Lawrence (Newcastle University)
Session 1- NOVEL BEINGS 11:30-12:30, CHAIR: Dr Sarah Morley
11:30- Dr David Lawrence (Newcastle University)
12:00- Professor John Harris (Professor Emeritus, Manchester University, Visiting Professor, King’s College London)
Session 2- LEGAL CHALLENGES 13:30-15:00, CHAIR: Professor Mathias Siems
13:30- Dr Aisling McMahon (Maynooth University, IRE)
14:00- Mr Chris Riley (Durham University) and Dr Oludara Akanmidu (De Montfort University)
14:30- Professor Dirk Zetzsche (University of Luxembourg, LU)
Coffee Break- 15:00-15:30
Session 3- OTHER MINDS 15:30-16:30, CHAIR: Professor Lilian Edwards
15:30- Dr Joshua Jowitt (Newcastle University)
16:00- Dr Gardar Arnason (University of Tübingen, GER)
16:30- Dr Henry Shevlin (University of Cambridge)
Date: Friday 28 September 2018, 09:00 – 18:00
Location: Faculty of Law, University Of Cambridge, 10 West Road, Cambridge, CB3 9DZ
This conference will explore what human rights law has to say on the issue of abortion in 2018.
- Contact: Professor Jean McHale at j.v.mchale [at] bham.ac.uk
Health law is a comparatively young legal discipline. It has emerged from a backdrop of ‘Medical’ and ‘Health Care’. But what exactly is ‘Health Law’ itself? What do we mean when we write about or teach Health Law?
Health law is a comparatively young legal discipline. It has emerged from a backdrop of “Medical” and “Health Care “. But what exactly is “Health Law” itself? What do we mean when we write about or Health Law? The aim of this one day Workshop is to explore health law from a range of perspectives: doctrinal/historical/critical. We will consider the disciplinary interface within and outside law, i.e. health law’s connection to other legal fields, its relationship with bioethics, humanities, and social sciences, and their impact on the health law methodology. In particular the speakers will address a number of pressing questions that have influenced the field in the past and will shape it in future.
- To what extent is the fact that an academic scholar began as a public lawyer which led to them working in health law impacts on the way in which the discipline itself is framed?
- Is there a unique health law method and if so, to what extent have the developments in other fields and disciplines contributed to the emergence of that method?
- Are we witnessing any important paradigm shift in the field at the moment?
It will be a day in which people are encouraged to explore ideas, synergies and question assumptions about what health law- was- is and where it is going.
Confirmed speakers include:
- Professor Richard Ashcroft, Queen Mary London;
- Professor Margaret Brazier, University of Manchester; Professor Emma Cave, University of Durham;
- Professor Sylvie Delacroix University of Birmingham;
- Professor Marie Fox, University of Liverpool;
- Professor Phil Fennell, University of Cardiff;
- Professor Jonathan Montgomery, UCL;
- Dr Judy Laing, University of Bristol; Professor Jean McHale, University of Birmingham;
- Professor Jose Miola, University of Leicester;
- Professor Nicky Prialux, University of Cardiff;
- Professor Keith Syrett, University of Bristol.
The event programme will be available shortly.
23 November 2017
Paediatric Organ Donation and Transplantation in the UK
Mary Ward House, London WC1H 9SN
This year our focus is Paediatric Organ Donation and Transplantation in the UK
We have incorporated complex clinical cases, professional expertise, personal experience and public policy into an ambitious programme to address a range of challenging ethical issues.
Representatives from NHSBT and BTS will highlight obstacles to implementing paediatric donation and organ allocation prioritisation in the UK.
Clinicians working in neonatal and paediatric intensive care units and those involved in the care and possible transplantation of children will set out how a range of potential paediatric donors and transplant recipients are identified and managed and provide insight into factors affecting the development of strategies to expand the paediatric donor pool.
Paediatric donor and recipient families will share their personal stories, and ways to identify and address the psychological impact of bereavement in paediatric donation will be discussed.
Management of the adolescent living donor and strategies to optimise adherence and transition among adolescent recipients will be addressed.
Living Donor Forum
24 November 2017
Living Donor Risk
Mary Ward House, London WC1H 9SN
This year our theme is Living Donor risk, and in particular where the clinician perspective may be at odds with that of the prospective donor. Is this Caring Concern or Pompous Paternalism? How difficult is it for Living Donors to donate?
The day will take the form of an interactive discussion and debate between physicians and surgeons, coordinators, patients and carers. Come with an open mind or prepare to have your assumptions challenged!
Student rates are available.
Date: Friday 12 January 2018, 09:00 – 17:00
Venue: University of Liverpool London Campus, Finsbury Square
This one-day symposium explores the current challenges facing the NHS including: the role of competition, accountability, the cost of ‘lifestyle’ diseases and the capacity of public regulatory arrangements to ensure that services benefit patients.
12th September, 2017, University of Leeds, Leeds, UK
This interdisciplinary conference marks the culmination of the ESRC research seminar series ‘Towards a European understanding of advance decision-making: a comparative, interdisciplinary approach’.
Registration for the conference is free, but compulsory. Numbers are limited and early registration is highly recommended. Please register via Eventbrite: https://www.eventbrite.co.uk/e/understandings-of-advance-decision-making-an-interdisciplinary-conference-tickets-33922111950. Bursaries will be available to fund travel and accommodation costs for PhD students – please email S.Halliday[at]leeds.ac.uk if you wish to apply for financial support. The conference is aimed at both academic and professional attendees.
Professor John Ellershaw (Professor of Palliative Medicine, University of Liverpool)
Professor Rob Heywood (Professor of Medical Law, University of East Anglia).
Dr Louise Bramley, University of Nottingham: Negotiating care services with frailty: Implications for decision making and advance care panning. Abstract
Astrid Gieselmann & Professor Jochen Vollmann, Ruhr Universität Bochum: How should advance directives be implemented in psychiatry? Clinicians’ attitudes toward different types of advance directives in psychiatric treatment in Germany. Abstract
Dr Samantha Halliday, University of Leeds, & Professor Jean McHale, University of Birmingham: Basic care, advance decisions and the Burke effect. Abstract
Dr Ruth Horn: “Why should I question a patient’s wish?” A comparative study on physicians’ perspectives on their duties to respect advance directives. Abstract
Gillian Loomes, University of York: Cripping the Crystal Ball: Exploring the Synergies and Tensions when Advance Care Planning and Disability Politics Meet. Abstract
Dr Alicia Perez Blanco, Hospital Universitario de La Princesa, Madrid: Can advance care planning enhance decision-making at end-of-life in the Intensive Care Unit? Abstract
Kevin De Sabbata, University of Leeds, Advance Directives, Dementia and the UN Convention on the Rights of Persons with Disabilities: A new role for anticipated will. Abstract
Professor Jo Samanta, De Montfort University: Advance decisions and Welfare LPAs: belt and braces for advance care planning? Abstract
Dr Lucy Stephenson, Kings’ College London: Provision for Self-Binding Advance Directives Should be Included in Mental Health Act Reform. Abstract
The conference is generously funded by the Economic & Social Research Council (ESRC).
This conference is part of the research seminar series ‘Towards a European understanding of advance decision-making: a comparative, interdisciplinary approach’ funded by the Economic and Social Research Council. It is being organised by the grant holders, Dr Samantha Halliday, Prof. Jörg Richter and Prof Gillian Hundt.
Further information here.