Update: Nuffield Council on Bioethics

Non-invasive prenatal testing – genome editing policy and regulation – artificial gametes – dual use in biology and biomedicine – longevity – children and clinical research.

Extracts from the Council’s June 2016 newsletter:

The Council is seeking input from a wide range of people and organisations to inform its current project exploring the ethical issues raised by recent and potential future developments in non-invasive prenatal testing (NIPT). The closing date for responses is 25 July 2016.

The Council and Sciencewise have co-hosted a workshop to discuss the possibilities and limitations of public dialogue for genome editing policy and regulation.The workshop, held in March, focussed on identifying policy issues relating to genome editing that are likely to raise public interest and concern, and ways in which hearing from the public might contribute to understanding the societal implications of the technologies. A report has now been published that summarises the discussion and suggested next steps – download the report Public dialogue on genome editing: Why? When? Who?

A summary of the 2016 Forward Look meeting has now been published on the Council’s website. The meeting took place over two days, with three possible future work topics discussed on the first day. Background papers on each of these topics had been commissioned in advance of the meeting to inform the discussions.

On 22 April the Council hosted a meeting to explore collaboration between life-sciences industry and young people to improve research. The Council recommended in its report Children and clinical research: ethical issues that industry partners should contribute financially to the running costs of initiatives that facilitate involvement, such as the network of Young Persons’ Advisory Groups. This meeting aimed to explore the benefits of young people’s involvement in the wider research agenda, the challenges to achieving such involvement, and possible ways to tackle those challenges. A number of suggestions for future action were put forward, including the development of a ‘statement of aspiration’, to which individuals or organisations could sign up, which could then inform the development of a position paper setting out guidance on good practice and showcasing what young people can contribute. Download a note of the meeting.

Sign up for the Council’s newsletters in full here.



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