A new report from the Nuffield Council on Bioethics looks at how children and young people can ethically be involved in clinical research, and makes recommendations about the roles and responsibilities of children, their parents or guardians, researchers and others. Alongside the report and one page summary, the Council has published an illustrated magazine aimed at parents and young people and an animation.
The launch event was attended by over 100 people, and included presentations and panel discussions with Working Party members and young people and parents who have been involved throughout the project.
The Council has now begun a series of follow up activities to disseminate and discuss the report’s findings and recommendations both in the UK and internationally. Working Party members and staff have presented at several conferences including the RCPCH annual conference, and on 12 June 2015, Spanish translations of the Council’s publications, generously supported by the Víctor Grífols i Lucas Foundation, were launched at a seminar in Barcelona.