Friday 30th January 2015, 09:30 – 16:30, Sheffield Law School
Sheffield Institute for Biotechnology Law and Ethics (SIBLE) and the Wellcome Trust are holding a symposium to consider the appropriate use of patient health and genetic data by commercial organisations.
The symposium will provide an opportunity to hear and discuss the approach to commercial access to data taken by some key national and international projects and resources. There is evidence that commercial access to data is relevant to public confidence in the safeguards and governance designed to protect health and genetic data. What controls on access currently exist? To what extent do these controls currently regulate access by commercial organisations?
This is an opportunity to share current practice and consider alternative views on commercial access to genetic and health data in the future. From a commercial perspective, what are potential uses of genetic and health data in practice? From a patient and public perspective, what approach toward regulating access to commercial organisations, or for commercial use, might best promote public trust and confidence?
The event is open to anyone interested in the issues and may be relevant to policy makers, those responsible for managing access to health and genetic resources, patients, and members of the public.
Programme and booking information here.
For enquiries relating to this event please contact the Research Support Team at the School of Law: firstname.lastname@example.org