Conference: Regulation and Governance of Medical Database Research in the UK

17th June 2011

Sheffield Institute of Biotechnology Law and Ethics, School of Law, University of Sheffield

From the conference website: “Organised by Christopher Roy-Toole, Sebastian Sethe and Mark Taylor (Sheffield)

Confirmed speakers on the day include:

  • Prof. Sir John Burn (Newcastle)
  • Prof. Graeme Laurie (Edinburgh)
  • David Townend (Maastricht)
  • Prof. Deryck Beyleveld (Durham)

We expect also to welcome representatives of the National Information Governance Board for Health and Social Care (NIGB). This is a very topical matter given that the Coalition Government have announced plans to create a new Health Research Agency. This one day workshop will discuss the future face of NHS Information Governance in medical database research.

In particular, we will discuss the governance arrangements for ‘Research Data Banks’ and the implications of the organisational changes affecting the National Information Governance Board for Health and Social Care.We will consider the possibilities of generic ethical approval for ‘Research Data Banks’ and alternative routes to the lawful processing of confidential patient information for research purposes.

We will examine the regulatory basis for the NIHR Research Capability Programme amongst other examples and we shall also discuss wider ethical and legal issues surrounding Privacy in Research. There will be a specific focus on the challenges and opportunities thrown up by genomic research.”

Conference Fee: Full Registration £20; Student Registration £10

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